1 month on: a quick blood update
The paraproteins have jumped up a bit from 13.2 to 14.3. It’s disappointing but not surprising. Bit we also have a bit of good news: the haemaglobin is up a tad from 124 to 128. It’s still a good bit … Read More
The health system is a bit broken
We turned up with some drug related questions for the pharmacist. We were greeted by a specialist nurse. She was very nice and listened but just couldn’t address our questions. And she didn’t offer to ask anyone. So they remain … Read More
Important drug interaction
We’re really looking forward to being able to ask the specialist some questions. Except he’s not here. There is no specialist. We are met by a consultant pharmacist with a working interest in haematology. “This is how they do haematology … Read More
Slipping towards where we don’t want to go
We see a doc! The blood results are in – haemaglobin down by .1. If it had been up by .1 I would have cheered but it’s down. Again. And it’s the ‘again’ that is significant. It’s such a small … Read More
CT & blood test: In search of answers
Tomorrow we get the latest blood results and Husband has a CT. It could take a month usually to get the results of that but there’s a radiologist on the MDT team so they should get results at the MDT. … Read More
So many questions
It’s the hospital review appointment. Yet another day of hoping for good results whilst bracing in case. Husband is clearly a bit concerned about his blood results. The red cells have dropped each time in the last few months. Doc … Read More
Taking Stock: 2 years on Ibrutinib
Two years seems to have gone by so fast. Ibrutinib has subtly but comprehensively changed the way that Husband has been living with the cancer. He is living a normal life. He feels good. Dare I say we’re almost getting … Read More
8 Years On From “You have a blood cancer. It can’t be cured.”
The cancer ‘journey’ 8 years on. Are we there yet? We hate the ‘cancer journey’ phrase but there is a sense in which it resonates. Living with cancer is a bit like looking at the GPS on a long journey, … Read More
‘Stable’ and ‘not much to report’ are not to be underrated!
I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
7 Years Since Diagnosis
We’re coming up to 7 years since Husband was diagnosed, with an initial prognosis of 3-5 years (they thought that the cancer had spread to his liver – it hadn’t). Quite a milestone. We sit rather nervously awaiting the latest … Read More