1 month on: a quick blood update
The paraproteins have jumped up a bit from 13.2 to 14.3. It’s disappointing but not surprising. Bit we also have a bit of good news: the haemaglobin is up a tad from 124 to 128. It’s still a good bit … Read More
The health system is a bit broken
We turned up with some drug related questions for the pharmacist. We were greeted by a specialist nurse. She was very nice and listened but just couldn’t address our questions. And she didn’t offer to ask anyone. So they remain … Read More
Slipping towards where we don’t want to go
We see a doc! The blood results are in – haemaglobin down by .1. If it had been up by .1 I would have cheered but it’s down. Again. And it’s the ‘again’ that is significant. It’s such a small … Read More
Taking Stock: 2 years on Ibrutinib
Two years seems to have gone by so fast. Ibrutinib has subtly but comprehensively changed the way that Husband has been living with the cancer. He is living a normal life. He feels good. Dare I say we’re almost getting … Read More
‘Stable’ and ‘not much to report’ are not to be underrated!
I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
7 Years Since Diagnosis
We’re coming up to 7 years since Husband was diagnosed, with an initial prognosis of 3-5 years (they thought that the cancer had spread to his liver – it hadn’t). Quite a milestone. We sit rather nervously awaiting the latest … Read More
Normal is a range: blood tests & numbers
Two weeks later The two week appointment shows a slight improvement in red cells from 126 to 131 (any improvement is always most welcome!), with platelets up from 294 to 300. Sadly there is no update on the paraproteins, which … Read More
In Shock at Good Blood Results
It’s blood results day. I don’t have butterflies in my stomach – more like a herd of stampeding elephants. Husband sits quietly by the telephone; I feel physically sick as the adrenalin kicks in. So much hangs on this short … Read More
Blood test results day: it’s all about the numbers
Blood results day. Again. We live in three-monthly increments these days, which is much better than living according to weekly or day to day tests! For once I’m not terrified, largely because Husband has been so active lately. He clearly … Read More
The blood results are in
posted in: Cancer and faith
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I’m not sure why but I’ve been remembering the months when we watched anxiously to see how Husband’s ‘eczema’ was developing. We still don’t know exactly what was going on but we both knew that something was very wrong. His … Read More