1 month on: a quick blood update
The paraproteins have jumped up a bit from 13.2 to 14.3. It’s disappointing but not surprising. Bit we also have a bit of good news: the haemaglobin is up a tad from 124 to 128. It’s still a good bit … Read More
The health system is a bit broken
We turned up with some drug related questions for the pharmacist. We were greeted by a specialist nurse. She was very nice and listened but just couldn’t address our questions. And she didn’t offer to ask anyone. So they remain … Read More
So many questions
It’s the hospital review appointment. Yet another day of hoping for good results whilst bracing in case. Husband is clearly a bit concerned about his blood results. The red cells have dropped each time in the last few months. Doc … Read More
Taking Stock: 2 years on Ibrutinib
Two years seems to have gone by so fast. Ibrutinib has subtly but comprehensively changed the way that Husband has been living with the cancer. He is living a normal life. He feels good. Dare I say we’re almost getting … Read More
‘Stable’ and ‘not much to report’ are not to be underrated!
I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
7 Years Since Diagnosis
We’re coming up to 7 years since Husband was diagnosed, with an initial prognosis of 3-5 years (they thought that the cancer had spread to his liver – it hadn’t). Quite a milestone. We sit rather nervously awaiting the latest … Read More
Normal is a range: blood tests & numbers
Two weeks later The two week appointment shows a slight improvement in red cells from 126 to 131 (any improvement is always most welcome!), with platelets up from 294 to 300. Sadly there is no update on the paraproteins, which … Read More
In limbo: cancer progressing but no treatment plan yet
Phone consult day. I dumbly try to take notes as the doc explains things gently but firmly. There’s good and not so good news. The proteins are up from 13.6 to 20.5, “a consistent trend”, the haemoglobin is down from … Read More
“I didn’t think I’d last a year”: 5 years on
posted in: Cancer, Cancer and faith
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Husband’s three-monthly appointment is today. We live our lives in three-month increments, grateful each time to effectively be told “You can go and live your lives for three months”, as opposed to “We need to start treatment next week.” We’re … Read More
Setting Remission Sights Low
Husband feels pretty good at the moment. He certainly doesn’t ‘feel’ as if he has cancer. Of course you can’t necessarily feel it. That is both a blessing and a curse – you can have nasty surprises after blood tests … Read More