No hospital appointments. All week. What luxury. Shame we had to waste it on paperwork but it needs doing (if we live long enough to continue our business 🙂 ).
Husband is looking far more like himself and can walk the dog without getting breathless. I try not to panic every time he looks tired (he’s not sleeping well at all and he’s been busy) but all in all things seem to be going in the right direction.
My innards don’t feel right. Every time I think things are improving they don’t. I haven’t seen any clear signs of blood in the last few days so I hope that’s a good sign.
And yet… ‘Lord something is wrong, isn’t it?’ Not sure why but I put a hand to my stomach as if as if to comfort a child … but the child is me.
I get a hospital letter. The sigmoidoscopy is in 4 days time…
Marcus Evans
Hi,
I’ve just found your blog and read through some entries. Great stuff and a really good resource for people. I also spotted you’d put my blog on here as a resource, thanks for that. Very much a case of all stocking together.
I’m not sure if I know you from my groups or not but I love your writing. Keep up the good work!
Admin
Hi!
Thank you so much for your kind comment. Your splenic lymphoma blog helped us enormously when my husband was first diagnosed – thank you. We’re not on any Facebook groups but we follow your blog avidly. Your blog is so good that to be honest I wondered if there was any point writing one but everyone’s experience and perspective are different so we thought we’d share some of what we’ve learned in the hope that we could help or just encourage someone else. Sometimes little things can help. As you say we all need to stick together!
Eliza