“Happy New Year. How are you?” We never know quite how to respond to this. People want to hear good news – now more than ever. The honest truth is “We don’t know. We’re waiting for blood results.” We are … Read More
I feel rather guilty writing this but people with ME / Chronic Fatigue Syndrome do often feel guilty. My husband has two blood cancers. Yet at the moment he can enjoy working in the garden and playing with the dog. … Read More
I’ve had to go away to work for a few days. I know husband doesn’t need me at home but I really didn’t want to go, like a dog not wanting to leave his post. Getting away from the business … Read More
We are both so tired – managing cancer and ME is not great. There is no let up with work, no temporary pass each time we have to confront the cancer with another hospital appointment. I’m tired of pretending that … Read More
Off to Cancer Unit for a check-up. Husband slept really badly, having to get up pretty much every 45 minutes to pee. He was so tired he asked me to drive to the hospital. He enjoys driving and finds it … Read More
Husband feels pretty good all things considered. He’s walking faster and more easily than he was during the first cycle. He isn’t sleeping well, though and the steroids are not exactly helping. His ankles are a bit swollen – seems to … Read More
We didn’t know what to expect with Husband’s first chemo but so far, apart from the really uncomfortable red eye thing, it’s going better than we’d expected. His scalp is very sensitive. He’s not sure if it’s the early stages … Read More
Looking for travel insurance was depressing since it meant talking about the cancer. Some companies won’t touch people with cancer even if they’re in remission, others offer cover but at terrifying prices. I even have to pay more because of … Read More
I am so desperately tired and drained, weary to my bones. My ME fatigue seems worse, more deep-rooted these days somehow. I’m running inwardly – I’m not sure from what but it’s exhausting. I’m probably running from husband’s cancer, from … Read More