I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
It’s been a while since we were in the hospital waiting room but here we are. It’s so busy that we’re in an overflow waiting area but it has an open window so we sit next to it in our … Read More
Phone consult day. I dumbly try to take notes as the doc explains things gently but firmly. There’s good and not so good news. The proteins are up from 13.6 to 20.5, “a consistent trend”, the haemoglobin is down from … Read More
“Happy New Year. How are you?” We never know quite how to respond to this. People want to hear good news – now more than ever. The honest truth is “We don’t know. We’re waiting for blood results.” We are … Read More
For once I don’t have a sick feeling in my stomach. The last test results were solid – stable proteins at 3.3 and a chart topping 160 for the haemoglobin. In a fit of optimism I book a cheap short … Read More
COVID vaccines and being clinically vulnerable We seem to be living in a weird half world, where we can’t fully engage with the world any more. So many people are not worried about COVID but Husband’s doctors are worried. We’ve … Read More
It’s blood results day. I don’t have butterflies in my stomach – more like a herd of stampeding elephants. Husband sits quietly by the telephone; I feel physically sick as the adrenalin kicks in. So much hangs on this short … Read More
Blood results day. Again. We live in three-monthly increments these days, which is much better than living according to weekly or day to day tests! For once I’m not terrified, largely because Husband has been so active lately. He clearly … Read More
Husband woke in the early hours in agony. He was in so much pain that he struggled to breathe to tell me what was going on. An icy fist grabbed my heart as I imagined heart attack or something (he’s … Read More
Husband’s three-monthly appointment is today. We live our lives in three-month increments, grateful each time to effectively be told “You can go and live your lives for three months”, as opposed to “We need to start treatment next week.” We’re … Read More