We’re coming up to 7 years since Husband was diagnosed, with an initial prognosis of 3-5 years (they thought that the cancer had spread to his liver – it hadn’t). Quite a milestone. We sit rather nervously awaiting the latest … Read More
Another long wait in our masks next to the window in the patient overflow waiting room. We feel so vulnerable around people these days. No doubt everyone in here feels the same. We all awkwardly give each other as much … Read More
We had a false start last week when the confirmed delivery changed to ‘delivery cancelled / not attempted’. Husband called the helpline, commendably calm and reasonable. They acknowledged an error but since they only deliver twice a week to this … Read More
It’s been a while since we were in the hospital waiting room but here we are. It’s so busy that we’re in an overflow waiting area but it has an open window so we sit next to it in our … Read More
Phone consult day. I dumbly try to take notes as the doc explains things gently but firmly. There’s good and not so good news. The proteins are up from 13.6 to 20.5, “a consistent trend”, the haemoglobin is down from … Read More
“Happy New Year. How are you?” We never know quite how to respond to this. People want to hear good news – now more than ever. The honest truth is “We don’t know. We’re waiting for blood results.” We are … Read More
For once I don’t have a sick feeling in my stomach. The last test results were solid – stable proteins at 3.3 and a chart topping 160 for the haemoglobin. In a fit of optimism I book a cheap short … Read More
Professor Axel Kahn spoke to France Inter about cancer having ‘caught up with him’ after all these years. He’s not unaware of the irony. He explains, “as a cancer specialist myself I know that in all likelihood I am on … Read More
The new steroid regime seems to be working much better for him. When he had 3 days of steroids (2 to ‘pre-load’ and 1 lot for the first day of chemo) he really crashed on the second day of chemo … Read More
Today was the mid month blood test. Dr Inscrutable was happy with the results: 122 for red cells, 283 for platelets and 3.3 for white cells. Husband asks why they were so keen to begin treating him when he wasn’t … Read More