Two years seems to have gone by so fast. Ibrutinib has subtly but comprehensively changed the way that Husband has been living with the cancer. He is living a normal life. He feels good. Dare I say we’re almost getting … Read More
I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
We’re coming up to 7 years since Husband was diagnosed, with an initial prognosis of 3-5 years (they thought that the cancer had spread to his liver – it hadn’t). Quite a milestone. We sit rather nervously awaiting the latest … Read More
We had a false start last week when the confirmed delivery changed to ‘delivery cancelled / not attempted’. Husband called the helpline, commendably calm and reasonable. They acknowledged an error but since they only deliver twice a week to this … Read More
It’s been a while since we were in the hospital waiting room but here we are. It’s so busy that we’re in an overflow waiting area but it has an open window so we sit next to it in our … Read More
Phone consult day. I dumbly try to take notes as the doc explains things gently but firmly. There’s good and not so good news. The proteins are up from 13.6 to 20.5, “a consistent trend”, the haemoglobin is down from … Read More
“Happy New Year. How are you?” We never know quite how to respond to this. People want to hear good news – now more than ever. The honest truth is “We don’t know. We’re waiting for blood results.” We are … Read More
For once I don’t have a sick feeling in my stomach. The last test results were solid – stable proteins at 3.3 and a chart topping 160 for the haemoglobin. In a fit of optimism I book a cheap short … Read More
I’ve been thinking back to my last few posts. Why do I feel a bit bad for sharing positive updates? I’m horribly conscious as I write this that some people won’t be having a good day today, won’t be getting … Read More
It’s blood results day. I don’t have butterflies in my stomach – more like a herd of stampeding elephants. Husband sits quietly by the telephone; I feel physically sick as the adrenalin kicks in. So much hangs on this short … Read More