Another long wait in our masks next to the window in the patient overflow waiting room. We feel so vulnerable around people these days. No doubt everyone in here feels the same. We all awkwardly give each other as much … Read More
We had a false start last week when the confirmed delivery changed to ‘delivery cancelled / not attempted’. Husband called the helpline, commendably calm and reasonable. They acknowledged an error but since they only deliver twice a week to this … Read More
It’s been a while since we were in the hospital waiting room but here we are. It’s so busy that we’re in an overflow waiting area but it has an open window so we sit next to it in our … Read More
“Happy New Year. How are you?” We never know quite how to respond to this. People want to hear good news – now more than ever. The honest truth is “We don’t know. We’re waiting for blood results.” We are … Read More
It’s blood results day. I don’t have butterflies in my stomach – more like a herd of stampeding elephants. Husband sits quietly by the telephone; I feel physically sick as the adrenalin kicks in. So much hangs on this short … Read More
Blood results day. Again. We live in three-monthly increments these days, which is much better than living according to weekly or day to day tests! For once I’m not terrified, largely because Husband has been so active lately. He clearly … Read More
I’m not sure why but I’ve been remembering the months when we watched anxiously to see how Husband’s ‘eczema’ was developing. We still don’t know exactly what was going on but we both knew that something was very wrong. His … Read More
The Prime Minister is in hospital, the Chief Medical Officer is isolating, the Queen addressed the nation to steady nerves. Oh boy. It feels so weird that we’re living untouched in our little bubble but there are COVID cases at … Read More
Three months goes so quickly. I can’t believe it’s already time for blood tests and the monitoring hospital appointment. He’s feeling pretty good but I worry because he suddenly gets tired and breathless. His scalp is a bit itchy and dry … Read More
He’s feeling very tired, his brain is woolly and he’s feeling pretty sick today. He’s limited in terms of what he can eat. The second day after chemo is usually his roughest. I look around the kitchen at the ‘chemo’ … Read More