The cancer ‘journey’ 8 years on. Are we there yet? We hate the ‘cancer journey’ phrase but there is a sense in which it resonates. Living with cancer is a bit like looking at the GPS on a long journey, … Read More
I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
It’s good to see a relaxed looking Dr Inscrutable as we walk into the consulting room. He’s always calm but after 7 years we’ve learned to read the degrees of calm a bit. It’s only 6 weeks since the last … Read More
Two weeks later The two week appointment shows a slight improvement in red cells from 126 to 131 (any improvement is always most welcome!), with platelets up from 294 to 300. Sadly there is no update on the paraproteins, which … Read More
Another long wait in our masks next to the window in the patient overflow waiting room. We feel so vulnerable around people these days. No doubt everyone in here feels the same. We all awkwardly give each other as much … Read More
We had a false start last week when the confirmed delivery changed to ‘delivery cancelled / not attempted’. Husband called the helpline, commendably calm and reasonable. They acknowledged an error but since they only deliver twice a week to this … Read More
It’s been a while since we were in the hospital waiting room but here we are. It’s so busy that we’re in an overflow waiting area but it has an open window so we sit next to it in our … Read More
“Happy New Year. How are you?” We never know quite how to respond to this. People want to hear good news – now more than ever. The honest truth is “We don’t know. We’re waiting for blood results.” We are … Read More
It’s blood results day. I don’t have butterflies in my stomach – more like a herd of stampeding elephants. Husband sits quietly by the telephone; I feel physically sick as the adrenalin kicks in. So much hangs on this short … Read More
Blood results day. Again. We live in three-monthly increments these days, which is much better than living according to weekly or day to day tests! For once I’m not terrified, largely because Husband has been so active lately. He clearly … Read More