It’s blood results day. I don’t have butterflies in my stomach – more like a herd of stampeding elephants. Husband sits quietly by the telephone; I feel physically sick as the adrenalin kicks in. So much hangs on this short … Read More
Blood results day. Again. We live in three-monthly increments these days, which is much better than living according to weekly or day to day tests! For once I’m not terrified, largely because Husband has been so active lately. He clearly … Read More
I’m not sure why but I’ve been remembering the months when we watched anxiously to see how Husband’s ‘eczema’ was developing. We still don’t know exactly what was going on but we both knew that something was very wrong. His … Read More
The Prime Minister is in hospital, the Chief Medical Officer is isolating, the Queen addressed the nation to steady nerves. Oh boy. It feels so weird that we’re living untouched in our little bubble but there are COVID cases at … Read More
Three months goes so quickly. I can’t believe it’s already time for blood tests and the monitoring hospital appointment. He’s feeling pretty good but I worry because he suddenly gets tired and breathless. His scalp is a bit itchy and dry … Read More
He’s feeling very tired, his brain is woolly and he’s feeling pretty sick today. He’s limited in terms of what he can eat. The second day after chemo is usually his roughest. I look around the kitchen at the ‘chemo’ … Read More
Husband is on the 5th chemo out of 6. The paraproteins are down to 12.9, so the docs are happy with progress. Dr Dry Humour commented, “That’s a really good drop from January [43.6!] to now”. Yeahy! The red cells … Read More
Much of the time Husband doesn’t think about the cancer. He jokes that I do that for him and in a sense that’s very true. He popped in looking thoughtful. “Should I order a 12 month supply of contact lenses? … Read More
We still haven’t been told anything about Waldenstrom’s. I Google. I do too much of that. Symptoms include headaches, nosebleeds, anaemia and low platelets. Sounds familiar. Also occasionally eczema-like skin lesions. I know that many things which can suggest cancer … Read More
Another early start for the hospital but good news: red cells are up by .7, platelets up a little and best of all the paraproteins are down from 35 to 22, with white cells at 4.1 so just in normal … Read More