I’m not sure why but I’ve been remembering the months when we watched anxiously to see how Husband’s ‘eczema’ was developing. We still don’t know exactly what was going on but we both knew that something was very wrong. His … Read More
The Prime Minister is in hospital, the Chief Medical Officer is isolating, the Queen addressed the nation to steady nerves. Oh boy. It feels so weird that we’re living untouched in our little bubble but there are COVID cases at … Read More
Three months goes so quickly. I can’t believe it’s already time for blood tests and the monitoring hospital appointment. He’s feeling pretty good but I worry because he suddenly gets tired and breathless. His scalp is a bit itchy and dry … Read More
He’s feeling very tired, his brain is woolly and he’s feeling pretty sick today. He’s limited in terms of what he can eat. The second day after chemo is usually his roughest. I look around the kitchen at the ‘chemo’ … Read More
Husband is on the 5th chemo out of 6. The paraproteins are down to 12.9, so the docs are happy with progress. Dr Dry Humour commented, “That’s a really good drop from January [43.6!] to now”. Yeahy! The red cells … Read More
Much of the time Husband doesn’t think about the cancer. He jokes that I do that for him and in a sense that’s very true. He popped in looking thoughtful. “Should I order a 12 month supply of contact lenses? … Read More
We still haven’t been told anything about Waldenstrom’s. I Google. I do too much of that. Symptoms include headaches, nosebleeds, anaemia and low platelets. Sounds familiar. Also occasionally eczema-like skin lesions. I know that many things which can suggest cancer … Read More
Another early start for the hospital but good news: red cells are up by .7, platelets up a little and best of all the paraproteins are down from 35 to 22, with white cells at 4.1 so just in normal … Read More
Husband saw something on TV about home versus hospice care for the terminally ill. A woman was explaining that she wanted to go to a hospice so that her family wouldn’t have the memory of her dying at home. He … Read More
Today was the mid month blood test. Dr Inscrutable was happy with the results: 122 for red cells, 283 for platelets and 3.3 for white cells. Husband asks why they were so keen to begin treating him when he wasn’t … Read More