Another long wait in our masks next to the window in the patient overflow waiting room. We feel so vulnerable around people these days. No doubt everyone in here feels the same. We all awkwardly give each other as much … Read More
We had a false start last week when the confirmed delivery changed to ‘delivery cancelled / not attempted’. Husband called the helpline, commendably calm and reasonable. They acknowledged an error but since they only deliver twice a week to this … Read More
It’s been a while since we were in the hospital waiting room but here we are. It’s so busy that we’re in an overflow waiting area but it has an open window so we sit next to it in our … Read More
Phone consult day. I dumbly try to take notes as the doc explains things gently but firmly. There’s good and not so good news. The proteins are up from 13.6 to 20.5, “a consistent trend”, the haemoglobin is down from … Read More
“Happy New Year. How are you?” We never know quite how to respond to this. People want to hear good news – now more than ever. The honest truth is “We don’t know. We’re waiting for blood results.” We are … Read More
For once I don’t have a sick feeling in my stomach. The last test results were solid – stable proteins at 3.3 and a chart topping 160 for the haemoglobin. In a fit of optimism I book a cheap short … Read More
I’ve been thinking back to my last few posts. Why do I feel a bit bad for sharing positive updates? I’m horribly conscious as I write this that some people won’t be having a good day today, won’t be getting … Read More
COVID vaccines and being clinically vulnerable We seem to be living in a weird half world, where we can’t fully engage with the world any more. So many people are not worried about COVID but Husband’s doctors are worried. We’ve … Read More
It’s blood results day. I don’t have butterflies in my stomach – more like a herd of stampeding elephants. Husband sits quietly by the telephone; I feel physically sick as the adrenalin kicks in. So much hangs on this short … Read More
Professor Axel Kahn spoke to France Inter about cancer having ‘caught up with him’ after all these years. He’s not unaware of the irony. He explains, “as a cancer specialist myself I know that in all likelihood I am on … Read More