Two years seems to have gone by so fast. Ibrutinib has subtly but comprehensively changed the way that Husband has been living with the cancer. He is living a normal life. He feels good. Dare I say we’re almost getting … Read More
The cancer ‘journey’ 8 years on. Are we there yet? We hate the ‘cancer journey’ phrase but there is a sense in which it resonates. Living with cancer is a bit like looking at the GPS on a long journey, … Read More
I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
COVID vaccines and being clinically vulnerable We seem to be living in a weird half world, where we can’t fully engage with the world any more. So many people are not worried about COVID but Husband’s doctors are worried. We’ve … Read More
Blood results day. Again. We live in three-monthly increments these days, which is much better than living according to weekly or day to day tests! For once I’m not terrified, largely because Husband has been so active lately. He clearly … Read More
It’s coming up to 5 years since Husband was diagnosed with cancer. Its a cliché but time goes so very quickly. He says that when he was first diagnosed he half thought he’d die within a year. He could have … Read More
Husband feels pretty good at the moment. He certainly doesn’t ‘feel’ as if he has cancer. Of course you can’t necessarily feel it. That is both a blessing and a curse – you can have nasty surprises after blood tests … Read More
It’s blood test time. Time to take our list of questions to the doc, the list of ‘is this worth telling them about or not?’ Husband’s skin has been very sensitive, as it was when the lymphoma was active, although … Read More
The docs were so happy with Husband’s results last time that he was given 4 months before the next test. We were even able to fit in a holiday, to sit on the beach and swim and live as if … Read More
It’s been so wonderful to drive past the hospital and not have any appointments. But three months isn’t as long as it sounds and here we are again, waiting nervously in a hospital corridor, trying for the sake of others … Read More