We are both so tired – managing cancer and ME is not great. There is no let up with work, no temporary pass each time we have to confront the cancer with another hospital appointment. I’m tired of pretending that … Read More
Looking for travel insurance was depressing since it meant talking about the cancer. Some companies won’t touch people with cancer even if they’re in remission, others offer cover but at terrifying prices. I even have to pay more because of … Read More
Husband had another splenectomy wound check today with the GP practice nurse. The little wounds have all healed nicely, the larger one they made to get the spleen out is taking a little longer but is definitely getting there. He … Read More
3 days later and we see Dr Inscrutable. Red cell count is now 108, platelets an awesome 163 (we say awesome, Dr Inscrutable simply says the bloods are improving as expected). The Doc is expecting Husband’s blood counts to continue … Read More
A week later and we’re in for a pre-op assessment of the blood count – 8.6 – haemoglobin ‘ok, would be nicer if it as a bit higher’ comments the Doc. Platelets are down to 61. The Doc is sorting … Read More
Next day husband declares that a transfusion is like 10 bars of chocolate washed down with a mug of espresso:-) . He is determined to enjoy the good weather and his additional energy by having a good walk. We negotiated… … Read More
We were up early so that we could be at the hospital for 8 am. This is to make things easier for the staff by avoiding rush hour (they sometimes have to treat people in the corridor it’s so busy) … Read More
Weekly blood test day. Haemoglobin is down to 7.2. Two weeks ago it was 8.2. Bummer… It really is time for a transfusion. It’s bitterly disappointing since he wasn’t feeling too bad so we’d hoped the numbers would have gone … Read More
When Husband was first diagnosed 3 months ago we were worried about waiting a few days before starting Rituximab but still no treatment. The specialist said that waiting an additional 2 weeks would ‘make no difference’ – sounds bit ominous … Read More
He’s starting to feel it. He hasn’t been able to breathe deeply for some weeks (too uncomfortable) so he’s been shallow breathing but now he can feel the enlarged spleen all the time and it’s making him feel uncomfortable. It’s … Read More