Husband had an awful nosebleed this morning. He thinks the nosebleed was because he simply blew his nose too hard but it shook him nonetheless. Although broadly he’s been feeling good since chemo, he’s feeling a bit rotten today and … Read More
He’s feeling very tired, his brain is woolly and he’s feeling pretty sick today. He’s limited in terms of what he can eat. The second day after chemo is usually his roughest. I look around the kitchen at the ‘chemo’ … Read More
Another early start for the hospital but good news: red cells are up by .7, platelets up a little and best of all the paraproteins are down from 35 to 22, with white cells at 4.1 so just in normal … Read More
Husband saw something on TV about home versus hospice care for the terminally ill. A woman was explaining that she wanted to go to a hospice so that her family wouldn’t have the memory of her dying at home. He … Read More
Husband is very conscious of the little dark track marks on the tops of his hands. The veins have become a bit discoloured and it looks like something has branded his wrist with little spidery black lines. He’s wondering if … Read More
The Doc told us that “Bendamustine is usually very well tolerated and Rituximab generally doesn’t cause any bother”. Sounds hopeful. As we walk into the hospital we automatically adjust our faces to ‘cheerful’ mode and head to the Cancer Unit. … Read More
Day 3 The luxury of being at home with no hospital appointments! Husband is feeling sleepy but managed a gentle dog walk. He’s not feeling too sick at all but is still taking the Ondansetron. He does feel a bit … Read More
Day 1 of Bendamustine. We really have no idea what to expect from this ‘bit more vicious’ drug but Husband manages to stride into the cancer treatment room with commendable cheer. The nurses put a heat pack on his hands … Read More
We are both so tired – managing cancer and ME is not great. There is no let up with work, no temporary pass each time we have to confront the cancer with another hospital appointment. I’m tired of pretending that … Read More
We know this horrible cancer thing will come back but we really do have to approach this one step at a time. The first step was to get through this cycle of treatment. Husband is really pleased that he’s been … Read More