Two years seems to have gone by so fast. Ibrutinib has subtly but comprehensively changed the way that Husband has been living with the cancer. He is living a normal life. He feels good. Dare I say we’re almost getting … Read More
The cancer ‘journey’ 8 years on. Are we there yet? We hate the ‘cancer journey’ phrase but there is a sense in which it resonates. Living with cancer is a bit like looking at the GPS on a long journey, … Read More
Husband looks up from paperwork, looking rather drained. “Just so that you know, I’m not sure that I can do the MRI. But I’ll try.” He doesn’t want to talk about it because that means he has to think about … Read More
Husband’s PSA count was a bit high at 5.1 in April last year and went up to 6.7 in the following month so he was sent to see a urologist. It went down to 6 in the summer. The urologist … Read More
I haven’t posted for a while because it doesn’t feel like there’s been much to post. ‘Stable’ and ‘not much to report’ don’t make for dramatic reading but they do make for good living so I hope that someone may … Read More
Travel Insurance Updates November 2022 When Husband was first diagnosed with blood cancer 7 years ago we would never have dared to hope that we would need travel insurance to cover both of us 7 years later. But we do! … Read More
We’re coming up to 7 years since Husband was diagnosed, with an initial prognosis of 3-5 years (they thought that the cancer had spread to his liver – it hadn’t). Quite a milestone. We sit rather nervously awaiting the latest … Read More
It’s good to see a relaxed looking Dr Inscrutable as we walk into the consulting room. He’s always calm but after 7 years we’ve learned to read the degrees of calm a bit. It’s only 6 weeks since the last … Read More
We asked the hospital pharmacy helpline about Ibrutinib and food / drug interactions. They weren’t sure so asked a clinical pharmacist to email us. We were amazed at how detailed and helpful his response was so share it here as … Read More
Two weeks later The two week appointment shows a slight improvement in red cells from 126 to 131 (any improvement is always most welcome!), with platelets up from 294 to 300. Sadly there is no update on the paraproteins, which … Read More