Husband feels pretty good all things considered. He’s walking faster and more easily than he was during the first cycle. He isn’t sleeping well, though and the steroids are not exactly helping. His ankles are a bit swollen – seems to … Read More
We didn’t know what to expect with Husband’s first chemo but so far, apart from the really uncomfortable red eye thing, it’s going better than we’d expected. His scalp is very sensitive. He’s not sure if it’s the early stages … Read More
No-one wants chemo for Christmas but we’re both conscious that it’s a blessing that treatment is available. I’m just praying (literally) that the chemo is more successful than the splenectomy. It should be. From my reading my guess is that … Read More
Husband wakes me, coffee in hand. ‘I think we need to go to the hospital’. I react with zen-like calm, pretty much levitating up through the velux and repeatedly knocking my glasses off the bedside table. ‘Calm down. My temperature … Read More
Doc asks Husband how he feels: ‘Good’. ‘Good’, responds Doc. No ‘lumps or bumps’ declares Doc after a brief examination. Husband mentions the continuing discomfort from where his spleen was but all in all he feels fine. We ask what … Read More
The platelets are down again – a definite trend since March – but still just in the normal range at 151. The red cells are 100 so not much change from 102 last time but given everything else it probably indicates … Read More
We made it to France :-). Husband is feeling and looking good, enjoying swimming and sunbathing and clearly benefiting from being out here. We haven’t had any long (or medium!) hikes and he’s pacing himself while swimming but he hasn’t … Read More
Things got a bit crappier today. We went to the hospital for what we thought would be a routine appointment. I really must learn that no such thing exists when it comes to cancer. We assumed that things would be … Read More
I am so desperately tired and drained, weary to my bones. My ME fatigue seems worse, more deep-rooted these days somehow. I’m running inwardly – I’m not sure from what but it’s exhausting. I’m probably running from husband’s cancer, from … Read More
Husband is in remission, I have been told I do not have cancer. Yet we’re both drained by running our small business. There is a horrible false sense of normality while we’re working but the reality is Husband is very … Read More